A mum has united families whose children have a rare genetic condition.

Jane Harwood arranged a meeting for parents from across the UK after her daughter Katie said she did not know any other children with the complex genetic condition Noonan Syndrome (NS).

Mrs Harwood said the gathering at her Dunmow home had since inspired families across the world to hold similar meetings.

Katie’s most significant NS symptom is a heart defect called Pulmonary Valve Stenosis, which means blood flow through the heart is obstructed.

Katie, seven, has had two procedures to widen her valve and her mum is now hopeful she will be able to hold on until her teenage years before a new valve is needed.