A fundraiser dinner meal is being held to help the charities who have supported a young woman whose condition mean she lives in constant pain.
Bethanie Thorn, 18, has an extreme form of the incurable Ehlers-Danlos Syndrome, a condition that affects the body’s connective tissue.
Her mother Julie, of Silver End, said: “Although she lives in constant pain she doesn’t let it get her down.
“She still meets up with friends and wants to go to university. She got an A in Art and a B in psychology in her AS Levels, even though she didn’t manage to finish the psychology paper.
“She is a really amazing person.”
Julie has organised a charity dinner on Sunday at the Little India Restaurant, Little Maplestead, with the money raised being split between the Ehlers-Danlos Support UK, The Sick Children’s Trust and the Pseudo Obstruction Research Trust, as they have supported the family.
Tickets include a three course meal as well as live entertainment from local bands Loose Joints and Rule of Three, Natasha Corrigan and many more.
There will also be a raffle with prizes donated by Tesco, Sainsbury’s, Colchester Zoo and others.
The dress code is smart casual with the theme of black and white.
Tickets are priced at £20 for adults, £15 for children aged under 12, and £5 for those who, like Bethanie, are j-tube fed or on TPN.
For more information and to buy tickets call Julie on 01376 585985 or 07515636143.
Follow Bethanie’s story on Facebook by searching for Bethanie's Battle.